Thesis

Co-designing patient-centred technology for chronic kidney disease : supporting the patient journey

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Awarding institution
  • University of Strathclyde
Date of award
  • 2023
Thesis identifier
  • T16689
Person Identifier (Local)
  • 201985102
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Department, School or Faculty
Abstract
  • Chronic kidney disease (CKD) patients endure their chronic condition, in addition to complicated treatment pathways and trajectories, high treatment burden and great volumes of information which is not always applicable to their individual situations. There are calls for more patient-centred care, with greater patient involvement in treatment decisions and routine collection of patient outcomes. Digital health innovations have the potential to address these points, but poorly designed or implemented interventions can increase treatment burden, and many fail to reach implementation, described as “pilotitis” in the literature. This thesis explores the use of a Participatory Action Research approach to designing CKD interventions, involving multidisciplinary stakeholders and patients in the design process. First a scoping review on implemented technology-based and patient-centred interventions for high treatment burden populations was conducted, with results providing factors for promoting patient-centredness in technological interventions. A multidisciplinary group of domain experts from academia and medicine was then formed, to identify issues within the community, provide initial design requirements and guide development of a prototype intervention. This prototype would be implemented and evaluated after 6 weeks use by CKD patients in routine care, as part of a vascular access-specific quality-of-life measure (VASQoL) validation study. This resulted in a System Usability Scale (SUS) evaluation and qualitative feedback from 26 CKD patients as well the feedback and observations of a clinical researcher. This evaluation identifies further design requirements as well as the idiosyncratic needs of dialysing CKD patients, such as situational impairment and perceived value of technology. The focus then shifted to patient education, with iterative design and feedback on prototype designs with the MDG, clinical stakeholders and CKD patients in online and in-person workshops, and an interactive symposium. Through multidisciplinary co-design and iterative development, the research produced extensive design requirements and prototype systems for CKD patient education and decision-making aids.
Advisor / supervisor
  • Morton, Alec (Writer on management science)
  • Kingsmore, David
  • Bouamrane, Matt-Mouley
  • Dunlop, Mark
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